Local Couple Seeking to Help Fund Cure for Rare Prader-Willi Syndrome

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The WPRO family was touched by the need and sentiment of one of our long time clients, John DiMuccio Jr. of CARJON Air Conditioning and Heating. Below is the story of John’s daughter Siena and her rare condition. They are seeking help from all available avenues, and we believed it important to help spread the word.

This is Siena DiMuccio. She is the happiest and sweetest four year old you will ever meet. She is full of so much life and love and is an inspiration to everyone who meets her! Siena has something called Prader-Willi Syndrome (PWS), and has already faced many challenges in her life.

PWS is a rare and complex genetic disorder that occurs sporadically in 1 in 15,000 births. PWS causes many complications, which include low muscle tone, developmental delays, and worst, a non-stop chronic feeling of hunger—never feeling full regardless of how much they ate. There is currently no cure for Prader-Willi Syndrome.

Scientists funded by the Foundation for Prader-Willi Research are making unprecedented progress in uncovering the underlying cause of many PWS symptoms, paving the way for new drug treatments so that our children may one day, live FULL and independent lives. None of this would be possible without everyone’s generous support.

Last year, Siena’s mom and dad, Felicia and John DiMuccio, raised just over $139,000 for research on finding a cure for PWS. We need your help to help us reach their fundraising goal this year and there has never been a better time to DOUBLE your impact! From now until Thanksgiving, EVERY donation made to our organization will be MATCHED by very generous donors in the community, Leon and Irina Shaulov.

 That means your $10 turns into $20, $50 into $100!! $1,000 into $2,000–with no cap! Since announcing our matching campaign 1 month ago, our organization has already raised $430,000! Can we reach $1,000,000 before Thanksgiving? With your help we can!

Lend your support, and learn more at www.curesiena.com

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